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Suggestions
Who to involve in ‘what matters’ conversations

In every conversation, include the person with a learning disability at the heart of the discussion as much as possible.

This is true in all circumstances – even if:

  • there are communication barriers with the person you’re supporting
  • they have more complex needs or limited understanding.

Involve the person you’re supporting

Always start by including the person themselves. They should be at the centre of the conversation about what matters to them.

Even if it looks like the person isn’t interested, or doesn’t look like they want to be involved, don't assume anything. They may have unique ways of expressing their preferences.

Ask who to involve

You should ask the person who they’d like to involve in the conversation. This respects their autonomy and makes sure they’ll be comfortable.

It also means that they’ll have an advocate whose views align with what matters to the person you’re supporting.

Approach the people they suggest. These people can provide valuable insights into what truly matters to the person.

Speak to other people

If the person has difficulty communicating their needs, the insights from people who know them well are crucial.

Always check with the person you’re supporting who they’d like you to include.

Involving professionals

Sometimes, you’ll need to involve social workers or other professionals, especially if the conversation is a statutory requirement.

These professionals will guide the process, but you should always prioritise the person’s preferences.

This will help you to make sure that the person with a learning disability is respected and involved in decisions about their life, promoting a positive and inclusive environment.

Remember

Think about the conversation from the supported person’s point of view:

  • “This is my plan, and I should always be supported to be as involved as I can.”
  • “Ask the people who know me well what is important to me, but ask me first if I’m able to tell you.”
  • “Sometimes, my social workers and other professionals have to be involved in these conversations.”