0:00 --> 0:06
Friend not foe Recording stories two
Supporting meaningful outcome-focussed recording
0:06 --> 0:10
in social care
Recording stories two Helen and the Heron
0:10 --> 0:16
Recording outcomes at the end of life
This is the second of two personal story videos
0:16 --> 0:20
in a series to support the written resource
Friend not foe.
0:20 --> 0:25
The resource was produced to support meaningful
0:25 --> 0:30
This is Helen’s story, titled “Helen and
0:30 --> 0:34
Like Fran’s story in our other video, Helen’s
story supports the principle of outcome-focussed
0:34 --> 0:40
recording from cradle to grave.
While Fran’s story is about accessing his
0:40 --> 0:47
records from birth, Helen’s story is about
recording outcomes at the end of life.
0:47 --> 0:52
The Hospice Movement teaches us about what
matters at the end of life, as summed up by
0:52 --> 0:58
Cecily Saunders, the founder of the movement:
“You matter because you are you, and you
0:58 --> 1:06
matter to the end of your life. We will do
all we can not only to help you die peacefully,
1:06 --> 1:12
but also to live until you die.”
Hope can still be a part of the end of life
1:12 --> 1:17
and people often want to keep doing things
for themselves and set goals to maintain their
1:17 --> 1:21
quality of life.
Listening to and recording what people want
1:21 --> 1:26
to achieve and what will make life meaningful
is as important as ever.
1:26 --> 1:31
Helen, who is in her seventies, has had cancer
for three years.
1:31 --> 1:37
She knew it was incurable at the time of diagnosis,
and her main outcome has been to remain living
1:37 --> 1:42
at home as long as possible and to have her
husband and daughter around.
1:42 --> 1:47
This is what was recorded about Helen’s
wishes, which has been agreed with her family
1:47 --> 1:51
and which the professionals who are supporting
her understand as important too.
1:51 --> 1:57
“Despite her advancing cancer, Helen wants
to continue to walk to the river every day
1:57 --> 2:03
with her partner and her daughter Rhian, as
long as this is possible. She always looks
2:03 --> 2:08
out for the heron which she sees as a good
omen for her family.”
2:08 --> 2:13
The background to what is recorded is that
Helen is ﬁnding walking more tiring due
2:13 --> 2:18
to her cancer and she knows that walking will
not be possible for much longer.
2:18 --> 2:23
She has found meaning in these walks and her
family plans to take her to the river in the
2:23 --> 2:29
car when walking is no longer an option.
They have also found a photograph of the heron
2:29 --> 2:35
for when Helen can’t get to the river.
This helps the family support Helen and accept
2:35 --> 2:38
We might think about outcomes for the family
2:38 --> 2:42
members who are caring for Helen at the end
of her life.
2:42 --> 2:47
We know that Helen’s daughter wanted to
spend time being close to her mum until the
2:47 --> 2:52
end of her life and that ﬁnding shared meaning
and hope through watching the heron was comforting
2:52 --> 2:59
to her as well as to her mum.
Having a shared record helps everyone involved
2:59 --> 3:02
to understand priorities at every stage of
3:02 --> 3:06
It doesn’t need to be lengthy to tell us
a lot about what matters.