In every conversation, take every opportunity to include the person themselves as much as possible.
This is true in all circumstances – even if:
Always start by including the person themselves. They should be at the centre of the conversation about what matters to them.
Where possible, always check with the person who they’d like to have a say in their care or support.
Even if it looks like the person isn’t interested, or doesn’t look like they want to be involved, don’t assume anything.
Start by asking the person you’re supporting who you can involve in the conversation and approach those people.
Carers, partners, and family members can provide context that may significantly change the care and support plan.
If the person has difficulty communicating what matters to them, the insights from carers, partners, and family members can become really valuable.
Memory loss and confusion are common in people with dementia, so having another person in the room can help keep the conversation on track.
Always check with the person with dementia who you can consult with, as the views of others may not always align with what matters to them.
Be aware that some cultures may view dementia as a spiritual or religious punishment. This means close-knit communities and families may feel ashamed or hesitant to seek help.
Families often support their loved ones with dementia for many years before asking services for support, feeling it’s their responsibility.
This means the person’s dementia may have progressed a lot by the time they start the ‘what matters’ process. The family may be anxious about the process and ‘losing’ their loved one.
Sometimes, you’ll need to involve social workers or other professionals in the ‘what matters’ conversation, especially if the conversation is a statutory requirement.
These professionals will guide the process, but you should always prioritise the person’s preferences.
Their needs, preferences, and feelings should guide the conversation and the care and support plan.
This is a way of making sure that the support they get is truly person-centred and respectful of their individuality.
